Conquering Chiari With Cynful

For my beautiful sister, Kaeko… ❤

Shot on location at:

September is Chiari Malformation Awareness Month.  And this disease is something that one of my personal heroes, Kaeko Freenote, has suffered from for an incredibly long time.

What is Chairi Malformation, you ask?  According to Mayo Clinic, Chiari (pronounced: kee-AH-ree) Malformation (also known as Arnold Chiari Malformation) is a condition in which brain tissue extends into your spinal canal. It occurs when part of your skull is abnormally small or misshapen, pressing on your brain and forcing it downward.”

There are many symptoms to Chiari Malformation including but not limited to: pain, headaches usually after sneezing or coughing, dizziness (balance issues) and coordination issues. The most common form is congenital; but all forms depending on symptoms and level of severity can be treated with either medication, surgery or a combination of the two. Some forms of Chiari don’t need treatment at all.

While the information on Chiari is vast, there’s still plenty being learned about this disease. Research is being done daily over at the National Institutes of Health’s (NIH) National Institute of Neurological Disorders and Stroke (NINDS) among other places. I wish I could write more about this but without knowing more information, I’d be misinforming you and that is something I don’t want.  So…in an effort to pass the good information and raise awareness, I strongly encourage you to find out more about Chiari Malformation, how to detect it and what you should know by visiting

In the meantime, wear purple in support of your friends and family who are living with this disease.  Rock the purple and conquer Chiari…together.

Much love and respect.


Hair: TRUTH HAIR Cerys –  black & whites [SLurl | MP]
Dress: [Cynful] Bring The Sexy Back @ Cosmopolitan [SLurl |MP-1/MP-2]
Shoes: Pure Poison – Fabia Sandals [SLurl | MP]

Earrings: MG – Earrings – Amalfi Summer Nights [SLurl | MP]
Ring (Left Hand): MANIK QUEEN – Mood Rings – Mysterious [SLurl | MP]
Ring (Left Hand): Izzie’s – Midi Rings (silver) – modded [SLurl | MP]

Body: Maitreya Mesh Body – Lara [SLurl | Not sold on MP]
Hands: Slink AvEnhance Hands Female – Casual v2.4 [SLurl | MP]
Feet: Slink AvEnhance Feet Female Deluxe Pack [SLurl | MP]
Eyelids: Slink Mesh Lids and Lashes (Pose Prop) [SLurl | MP]

My bunny: MishMish – Bunny Fluffz – Violet @ The Arcade [SLurl | MP]

*Skin, shape, eyes information: unavailable
**Pose included in the LumiPro Photography System
***Shot on location at: